There are many topics which tend to remain in the world of the elite or the learned. One of these is Jewish Medical Ethics. A recent book came out which I believe will allow those not as versed in the subject to get a good sense of how halacha confronts modern medicine. Feldheim published The Value of Human Life, which contains articles from a Jewish medical ethics conference held in Italy in 2008. All the usual suspects are represented, such R. JD Bleich and Professor Avraham Steinberg. The essays cover topics regarding infertility, organ donation, end-of-life care and also two essays on general issues of taking care of oneself during life. The book is sparsely footnoted, which makes it easily readable (for those who want more in depth discussion, this book is not the primary source). One of the more fascinating stylistic points of the book is that they kept the essays in a similar format to the actual presentations, including stories, references to other talks, etc. I would recommend people read this book to get a feel of the questions that would need to be asked and investigated if, G-d forbid, people should confront the harshness of life. While I don’t agree with all the opinions presented, it is important to know debate exists, and the authors tend not to give definitive answers so much as the questions needed to be investigated.
As a healthcare chaplain, one of the more neglected elements is that families don’t know how to be advocates for themselves, speaking up when something doesn’t seem appropriate or right. Some of this is due to lack of informedness. If I don’t know, I can’t know what questions to ask. I always find myself in the role of patient advocate, teaching patients and families that they have options and choices they can request from the healthcare provider. Obviously, there is a limit, but the limit is not as narrow as sometimes presented.